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Type: Book
Audience: Adult
Subject(s): Siblings of Special Needs Brothers or Sisters, Specific Disabilities

Troubled Journey: Coming to Terms with the Mental Illness of a Sibling or Parent

Author | Organizer | Group(s): Diane T. Marsh
Explores various illnesses, such as manic depression and schizophrenia, and discusses how these illnesses affect other family members, while giving helpful tools and advice for those involved to overcome problems in the homes where such illnesses exist.
Type: Book
Audience: Adult
Subject(s): Siblings of Special Needs Brothers or Sisters

That Went Well: Adventures in Caring for My Sister

Author | Organizer | Group(s): Terrell Harris Dougan
Meet Terrell Dougan's sister, Irene: a woman in her sixties who still believes in Santa Claus and the Easter Bunny--but who also enjoys playing those characters for the children at the local hospital; whose favorite outfit, which she'll sneak into whenever Terrell's back is turned, consists of Mickey Mouse kneesocks and shorts; who wins over the neighborhood kids by hosting two fire trucks at her lemonade stand; whose fridge bears a magnet: NORMAL PEOPLE WORRY ME.
Type: Book
Audience: Adult
Subject(s): Siblings of Special Needs Brothers or Sisters, Entertainment / Good Reads, Grieving

Small World: A Funny and Heartfelt Novel of Divorced Sisters, Family Secrets, and Hope

Author | Organizer | Group(s): Laura Zigman

“[A] brave and heartfelt book of truths.”—New York Times Book Review (A Group Text Pick and Editors' Choice)

From bestselling author Laura Zigman comes a heartfelt novel about two offbeat and newly divorced sisters who move in together as adults—and finally reckon with their childhood

A year after her divorce, Joyce is settling into being single again. She likes her job archiving family photos and videos, and she’s developed a secret comforting hobby: trolling the neighborhood social networking site, Small World, for posts that help solve life’s easiest problems. When her older sister, Lydia, also divorced, calls to tell her she’s moving back east from Los Angeles after almost thirty years away, Joyce invites Lydia to move into her Cambridge apartment. Temporarily. Just until she finds a place of her own.

Type: Book
Audience: Adult
Subject(s): Siblings of Special Needs Brothers or Sisters

Being the Other One: Growing Up with a Brother or Sister Who Has Special Needs

Author | Organizer | Group(s): Kate Strohm

When there's a disabled child in the family, how are normally developing siblings affected? According to Kate Strohm, a counselor and health educator, siblings of the disabled face particular emotional challenges that are often overlooked. Able siblings commonly struggle with feelings of isolation, grief, anger, and anxiety—and these and other emotional issues can have lifelong effects.

Being the Other One is based on the author's own experience (as a sibling of a sister with cerebral palsy) and on extensive interviews she conducted with siblings of all ages. In clear and compassionate terms, Strohm explores the often secret feelings of siblings and offers valuable strategies for coping with the challenges they face.

Type: Book
Audience: Adult
Subject(s): Siblings of Special Needs Brothers or Sisters, Specific Disabilities

How to Be a Sister: A Love Story with a Twist of Autism

Author | Organizer | Group(s): Eileen Garvin

The first book by acclaimed author Eileen Garvin―her deeply felt, impeccably written memoir, How to Be a Sister will speak to siblings, parents, friends, and teachers of people with autism―and to anyone who sometimes struggles to connect with someone difficult or different.

Eileen Garvin’s older sister, Margaret, was diagnosed with severe autism at age three. Growing up alongside Margaret wasn’t easy: Eileen often found herself in situations that were simultaneously awkward, hilarious, and heartbreaking. For example, losing a blue plastic hairbrush could leave Margaret inconsolable for hours, and a quiet Sunday Mass might provoke an outburst of laughter, swearing, or dancing.

Type: Book
Audience: Adult
Subject(s): Siblings of Special Needs Brothers or Sisters

The Ride Together: A Brother and Sister’s Memoir of Autism in the Family

Author | Organizer | Group(s): Paul Karasik

We looked like a cup of human fruit cocktail dumped onto the top of the house, each piece different but all out of the same can.

So begins a book unlike any other, half comics and half text, about a family that lives with autism -- and the strange life that is ordinary to them.
The oldest son, David, recites Superman episodes as he walks around the living room. A late-night family poker game spirals into a fog-driven duel. A thug from an old black-and-white rerun crawls out of the television. A housekeeper transforms into an avenging angel. A broken plate signals a terrible change in the family that none of them can prevent...until it's too late.

This groundbreaking work was excerpted in The New York Times for its ability to honestly, eloquently, and respectfully set forth what life is like with autism in the family. What sets The Ride Together apart is its combination of imagination and realism -- its vision of a family's inner world -- with David at the center.

Type: Book
Audience: Adult
Subject(s): Siblings of Special Needs Brothers or Sisters, Accepting Differences

Special Siblings: Growing Up with Someone with a Disability

Author | Organizer | Group(s): Mary McHugh (Author), Stanley Klein Ph.D. (Foreword)
In this absorbing and candid book, Mary McHugh reveals what she experienced as the sister of a man with cerebral palsy and mental retardation—and shares what others have learned about being and having a “special sibling.” Weaving a lifetime of memories and reflections with relevant research and interviews with more than 100 other siblings and experts, McHugh explores a spectrum of feelings—from anger and guilt to love and pride—and helps readers understand the issues siblings may encounter
Type: Book
Audience: Juvenile / Elementary ( 6 - 12yrs)
Subject(s): Siblings of Special Needs Brothers or Sisters, Entertainment / Good Reads, Specific Disabilities

Wonder

Author | Organizer | Group(s): R. J. Palacio

NAMED ONE OF THE BEST CHILDREN’S BOOKS EVER BY TIME AND PARADE • E. B. WHITE READ ALOUD AWARD WINNER

I won’t describe what I look like. Whatever you’re thinking, it’s probably worse.

August Pullman was born with a facial difference that prevented him from going to a mainstream school—until now. Starting fifth grade at Beecher Prep, Auggie wants nothing more than to be treated like everybody else—but his new classmates can’t get past the way he looks.

Beginning from Auggie’s point of view and expanding to include his classmates, his sister, her boyfriend, and others, the perspectives converge to form a portrait of one community’s struggle to live up to its values.

R. J. Palacio has called her debut novel “a meditation on kindness”—indeed, every reader will come away with a greater appreciation for the simple courage of friendship. Auggie is a hero to remember who proves that you can’t blend in when you were born to stand out.

Type: Book
Audience: Juvenile / Elementary ( 6 - 12yrs)
Subject(s): Siblings of Special Needs Brothers or Sisters, Specific Disabilities

Tru Confessions

Author | Organizer | Group(s): Janet Tashjian

Twelve-year-old Tru wants two things more than anything else in the world--to find a cure for her twin brother, Eddie, who is developmentally delayed, and to create her own television show. So the day Tru learns about a teen video competition on the local cable network, she knows that this is her change to make both of her dreams come true. But the more she gets involved in the making of her video documentary about Eddie, the more Tru begins to understand his special needs and the complexity of her relationship with him. Eddie seems like a burden from time to time, but he just may be the most important person in Tru's life.

Written in the form of a computer diary, this refreshingly humorous novel, narrated by a sassy heroine,s sensitively portrays the struggles and triumph of living with a sibling with special needs.

Type: Book
Audience: Juvenile / Elementary ( 6 - 12yrs)
Subject(s): Siblings of Special Needs Brothers or Sisters, Specific Disabilities

Rules (Scholastic Gold)

Author | Organizer | Group(s): Cynthia Lord

This Newbery Honor Book is a heartfelt and witty story about feeling different and finding acceptance -- beyond the rules.

Rules joins the Scholastic Gold line, which features award-winning and beloved novels. Includes exclusive bonus content!

Twelve-year-old Catherine just wants a normal life, which is near impossible when you have a brother with autism and a family that revolves around his disability. She's spent years trying to teach David the rules from "a peach is not a funny-looking apple" to "keep your pants on in public" -- in order to head off David's embarrassing behaviors.

But the summer Catherine meets Jason, a surprising, new sort-of friend, and Kristi, the next-door friend she's always wished for, it's her own shocking behavior that turns everything upside down and forces her to ask: What is normal?

Type: Book
Audience: Early Learning / Preschool ( 0 - 5yrs), Juvenile / Elementary ( 6 - 12yrs)
Subject(s): Siblings of Special Needs Brothers or Sisters, Entertainment / Good Reads, Specific Disabilities

My Brother Charlie

Author | Organizer | Group(s): Holly Robinson Peete (Author), Ryan Elizabeth Peete (Author), Shane Evans (Illustrator)

From bestselling author and actress Holly Robinson Peete--a heartwarming story about a boy who happens to be autistic, based on Holly's son, who has autism.

"Charlie has autism. His brain works in a special way. It's harder for him to make friends. Or show his true feelings. Or stay safe." But as his big sister tells us, for everything that Charlie can't do well, there are plenty more things that he's good at. He knows the names of all the American presidents. He knows stuff about airplanes. And he can even play the piano better than anyone he knows.Actress and national autism spokesperson Holly Robinson Peete collaborates with her daughter on this book based on Holly's 10-year-old son, who has autism.

Type: Book
Audience: Young Adult (12 - 18yrs)
Subject(s): Siblings of Special Needs Brothers or Sisters, Specific Disabilities

Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters

Author | Organizer | Group(s): Brian G. Skotko, Susan P. Levine
Even the closest brothers and sisters don’t always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. FASTEN YOUR SEATBELT is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns.
Type: Book
Audience: Young Adult (12 - 18yrs)
Subject(s): Siblings of Special Needs Brothers or Sisters, Entertainment / Good Reads

Are You Alone on Purpose?

Author | Organizer | Group(s): Nancy Werlin
Harry Roth is the bane of Alison shandling’s existence. He’s obnoxious and rude, and thinks nothing of taunting brainy Alison or making comments about her autistic twin brother. Alison tries to ignore him, but since she sees him at school and at synagogue, he’s hard to avoid. then Harry is injured in a diving accident and winds up in a wheelchair. Now Harry is vulnerable, too, and Alison finds herself inexplicably drawn to him. initially cautious, these unlikely companions begin to understand each other, and their relationship grows first into a friendship and then into something more. . . .
SSP Resource! 1
Type: Book
Audience: Adult
Subject(s): Parenting

Uncommon Fathers: Reflections on Raising a Child With a Disability

Author | Organizer | Group(s): Donald J. Meyer (Editor)
Reflections on Raising a Child With a Disability
SSP Resource! 1
Type: Book, Article | Paper | Essay
Audience: Adult
Subject(s): Siblings of Special Needs Brothers or Sisters

Thicker Than Water: Essays by Adult Siblings of People with Disabilities

Author | Organizer | Group(s): Don Meyer (Editor)
Bound by blood, but not always by love, a sibling can be your friend or rival, defender or detractor – sometimes simultaneously! But what’s the impact on that bond when one sibling has a disability? In this thought-provoking essay collection, thirty-nine adult siblings reflect on how their lives have been indelibly shaped by their relationship with a brother or sister with special needs. Edited by Don Meyer, creator of Sibshops and an expert on sibling issues, Thicker Than Water reveals both positive and negative aspects of growing up with someone who might have received the lion’s share of his parents’ attention or who now requires extra support as an adult. These compelling essays express a diverse range of sibling experiences and attitudes. Contributors range in age from 20 to 70 and have siblings whose disabilities include Down syndrome, autism, cerebral palsy, seizures, visual impairment, fragile-X syndrome, intellectual disability, or mental illness.
SSP Resource! 1
Type: Book
Audience: Juvenile / Elementary ( 6 - 12yrs), Young Adult (12 - 18yrs)
Subject(s): Siblings of Special Needs Brothers or Sisters

The Sibling Slam Book: What It’s Really Like To Have A Brother Or Sister With Special Needs

Author | Organizer | Group(s): Don Meyer, David Gallagher
Siblings of special-needs children discuss hopes, fears, frustrations, resentment, and triumphs regarding their life with their siblings.
SSP Resource! 1
Type: Book
Audience: Early Learning / Preschool ( 0 - 5yrs), Juvenile / Elementary ( 6 - 12yrs)
Subject(s): Siblings of Special Needs Brothers or Sisters

Living with a Brother or Sister with Special Needs: A Book for Sibs

Author | Organizer | Group(s): Donald Meyer, Patricia F. Vadasy

Living with a Brother or Sister with Special Needs focuses on the intensity of emotions that brothers and sisters experience when they have a sibling with special needs, and the hard questions they ask: What caused my sibling's disability? Could my own child have a disability as well? What will happen to my brother or sister if my parents die? Written for young readers, the book discusses specific disabilities in easy to understand terms. It talks about the good and not-so-good parts of having a brother or sister who has special needs, and offers suggestions for how to make life easier for everyone in the family.

Type: Groups Online & In-person
Audience: Adult
Subject(s): Sibling of Special Needs Brother or Sister

SibNet for adult siblings

Author | Organizer | Group(s): SibNet
First launched in 1996 as a listserv, SibNet is the first Facebook group of its kind, dedicated to connecting adult siblings of people with disabilities, and other developmental and health concerns.
Type: Organization, Other Online Resource
Audience: Adult
Subject(s): Future Planning Resources

The Arc’s Center for Future Planning, including free online tools for siblings and families to create a future plan

Author | Organizer | Group(s): The Arc's Center for Future Planning
The Arc’s Center for Future Planning empowers people with disabilities and their families to take charge, plan ahead, and build lives filled with dignity, security, and purpose.
Type: Book
Audience: Adult
Subject(s): How to be and Ally

Demystifying Disability

Author | Organizer | Group(s): Emily Ladau

What to Know, What to Say, and How to Be an Ally

People with disabilities are the world’s largest minority, an estimated 15 percent of the global population. But many of us—disabled and nondisabled alike—don’t know how to act, what to say, or how to be an ally to the disability community. What are the appropriate ways to think, talk, and ask about disability? Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including:

• Recognizing and avoiding ableism (discrimination toward disabled people)
• Practicing good disability etiquette
• Ensuring accessibility becomes your standard practice, from everyday communication to planning special events
• Appreciating disability history and identity
• Identifying and speaking up about disability stereotypes in media

Type: Book
Audience: Adult
Subject(s): Parenting

How to Talk So Kids Will Listen & Listen So Kids Will Talk

Author | Organizer | Group(s): Adele Faber, Elaine Mazlish

This bestselling classic by internationally acclaimed experts on communication between parents and children includes fresh insights and suggestions, as well as the author’s time-tested methods to solve common problems and build foundations for lasting relationships, including innovative ways to:

· Cope with your child’s negative feelings, such as frustration, anger, and disappointment
· Express your strong feelings without being hurtful
· Engage your child’s willing cooperation
· Set firm limits and maintain goodwill
· Use alternatives to punishment that promote self-discipline
· Understand the difference between helpful and unhelpful praise
· Resolve family conflicts peacefully

Enthusiastically praised by parents and professionals around the world, Faber and Mazlish’s down-to-earth, respectful approach makes relationships with children of all ages less stressful and more rewarding.

SSP Resource! 1
Type: Book
Audience: Adult
Subject(s): Sibling of Special Needs Brother or Sister

The Sibling Survival Guide: Indispensable Information for Brothers and Sisters of Adults With Disabilities

Author | Organizer | Group(s): Don Meyer and Emily Holl
If you're a teenaged or adult brother or sister of someone with a disability, then this book is expressly for you. It offers a sense that you're not alone, tips on how to talk to your parents about plans for your sibling, and a crash course in guardianship, medical & legal issues, and government benefits if you're already caring for your sib. Edited by experts in the field of disabilities and sibling relationships, The Sibling Survival Guide focuses on the topmost concerns identified in a survey of hundreds of siblings. The chapter authors—experienced siblings and service providers—offer practical information and anecdotes about: statistics & research about siblings younger siblings' feelings impact on your life decisions caring for multiple generations aging and disability taking care of yourself getting services & advocacy future planning Parents, counselors, and disability service agencies will also want a copy of this useful and upbeat book.
SSP Resource! 1
Type: Article | Paper | Essay
Audience: Adult
Subject(s): Sibling of Special Needs Brother or Sister

Supporting Siblings at School

Author | Organizer | Group(s): Don Meyer, Emily Holl

Small Ways to Make a Big Difference for Siblings of Children with Disabilities

SSP Resource! 1
Type: Article | Paper | Essay
Audience: Adult
Subject(s): Other

How to Let Young Siblings Know You Care

Author | Organizer | Group(s): Don Meyer, Cristina Breshears, and Patrick Martin

We asked over fifty adult brothers and sisters of people with disabilities: "When you were younger, what did your parents, family members, and service
providers do to make you feel special and let you know they cared?"

SSP Resource! 1
Type: Article | Paper | Essay
Audience: Adult
Subject(s): Sibling of Special Needs Brother or Sister

What Siblings Would Like Parents and Service Providers to Know – Spanish

Author | Organizer | Group(s): Don Meyer

Despite the important and life-long roles they will play in the lives of their siblings who have support needs, even the most family-friendly agencies often overlook siblings. Siblings, often left in the literal and figurative waiting rooms of service delivery systems, deserve better. True
“family-centered” care and services will arrive when siblings are actively included in agencies’ functional definition of “family.”

The Sibling Support Project facilitated a discussion on SibNet, its online community for adult siblings of people with disabilities, regarding the considerations siblings want from parents, other family members, and service providers. the attached paper is a discussion of themes discussed by SibNet members and recommendations from the Sibling Support Project:

Type: Book
Audience: Adult
Subject(s): Sibling of Special Needs Brother or Sister

Riding the Bus with My Sister

Author | Organizer | Group(s): Rachel Simon
In the ten years since Rachel Simon first invited the world to board the bus with her and her sister, Cool Beth, readers across the globe have been moved by their story. Now, in an updated edition with fifty pages of new content, Rachel Simon reflects on changes in her life, Beth's life, and the lives of individuals with intellectual and developmental disabilities. The highlight is Beth's update, which is in her own words. A new Reader's Guide is also included. Join these two unforgettable sisters on their journey, this time in an even deeper and richer way.
Type: Book
Audience: Early Learning / Preschool ( 0 - 5yrs), Juvenile / Elementary ( 6 - 12yrs)
Subject(s): Sibling of Special Needs Brother or Sister

Billy’s Sister: Life when your sibling has a disability

Author | Organizer | Group(s): Jessica Leving (Author), Wiem Sfar (Illustrator)
Growing up with a sibling who has a disability can be hard. But it can also be... awesome! Based on the author's real-life experiences, this unique and touching children's book explores how siblings of kids with disabilities are special, too. Created with the support of licensed clinical social workers with the aim of helping siblings of kids with disabilities identify, express and process their feelings. This book is intended to be read with a parent or trusted adult and spark family discussions you'll keep coming back to.
Type: Book
Audience: Juvenile / Elementary ( 6 - 12yrs)
Subject(s): Entertainment / Good Read

Al Capone Does My Shirts (Tales from Alcatraz)

Author | Organizer | Group(s): Gennifer Choldenko
The Newbery Honor Book and New York Times Bestseller that is historical fiction with a hint of mystery about living at Alcatraz not as a prisoner, but as a kid meeting some of the most famous criminals in our history. Al Capone Does My Shirts has become an instant classic for all kids to read!
SSP Resource! 1
Type: Article | Paper | Essay
Audience: Adult
Subject(s): Sibling of Special Needs Brother or Sister

What Siblings Would Like Parents and Service Providers to Know – English

Author | Organizer | Group(s): Don Meyer

Despite the important and life-long roles they will play in the lives of their siblings who have support needs, even the most family-friendly agencies often overlook siblings. Siblings, often left in the literal and figurative waiting rooms of service delivery systems, deserve better. True
“family-centered” care and services will arrive when siblings are actively included in agencies’ functional definition of “family.”

The Sibling Support Project facilitated a discussion on SibNet, its online community for adult siblings of people with disabilities, regarding the considerations siblings want from parents, other family members, and service providers. the attached paper is a discussion of themes discussed by SibNet members and recommendations from the Sibling Support Project:

SSP Resource! 1
Type: Book
Audience: Early Learning / Preschool ( 0 - 5yrs), Juvenile / Elementary ( 6 - 12yrs)
Subject(s): Sibling of Special Needs Brother or Sister, Intellectual Disability

Views from Our Shoes: Growing Up With a Brother or Sister With Special Needs

Author | Organizer | Group(s): Donald J Meyer, Cary Pillo
Offers advice to siblings of developmentally disabled children, assuring them that they are not alone, and that other kids have had similar experiences
SSP Resource! 1
Type: Book
Audience: Adult
Subject(s): Sibshops

Sibshops: Workshops for Siblings of Children With Support Needs, Third Edition

Author | Organizer | Group(s): Don Meyer, Patricia F. Vadasy, Ph.D., Emily Holl, MFA, LMSW
Siblings of children with support needs have their own challenges, emotions, and concerns—and sometimes their unique needs can be unintentionally overlooked. Support siblings with the new third edition of Sibshops, your ultimate guide to planning peer support, informational, and recreational activities for siblings ages 8 through 17.