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Resource Compilation

This is a compilation of resources shared at Sibshop Facilitator Trainings and other events hosted by the Sibling Support Project. Thanks to all who have contributed!  These resources can be sorted by resource type, audience and subject.

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The resources below are being added to the search database above and will be removed once added

 

Articles, Books and Films

The Sibling Survival Guide: Indispensable Information for Brothers and Sisters of Adults with Disabilities

Thicker Than Water: Essays by Adult Siblings of People with Disabilities

How to Talk So Kids Will Listen and Listen So Kids Will Talk

Demystifying Disability: What to Know, What to Say, and How to be an Ally by Emily Ladau

Edna’s Gift

New York Times Parenting article on siblings: https://nyti.ms/2SXvYiR

Spectrum News article on siblings: https://bit.ly/39CI6wL

Vanier Family Institute article: Strength in Diversity: Positive Impacts of Children with Disabilities https://vanierinstitute.ca/strength-in-diversity-positive-impacts-of-children-with-disabilities/

Poem: Welcome to Holland – often cited by parents of children with disabilities https://www.dsasc.ca/uploads/8/5/3/9/8539131/welcome_to_holland.pdf

Wonder – a book and movie that includes a sibling story

Who Will Love Me by Kaleen Marshall – a book for caregivers. https://www.kaleenmarshall.com/who-will-love-me.

Riding the Bus with My Sister by Rachel Simon

My Dog Is As Smelly As Dirty Socks: And Other Funny Family Portraits – activity book to use with children https://www.amazon.com/Dog-Smelly-Dirty-Socks-Portraits/dp/0307930890

The Good Egg by Jory John https://www.amazon.com/gp/product/0062866001/ref=ox_sc_act_title_2?smid=ATVPDKIKX0DER&psc=1. Read aloud on YouTube: https://www.youtube.com/watch?v=eXwQQqHwajs.

For more children’s book recommendations visit http://sibsupport.wwwaz1-tr100.supercp.com/publications/, “Other Books for Young Readers” and “recommended reading list for young siblings.”

Future Planning Resources

The Arc’s Center for Future Planning, including free online tools for siblings and families to create a future plan: https://futureplanning.thearc.org/

Supported Decision Making Resources from the Sibling Leadership Network: https://siblingleadership.org/2017/08/23/helpful-resource-supported-decision-making/

Charting the Life Course free online tools for people with disabilities and families in multiple languages: https://www.lifecoursetools.com/

In Canada: http://www.partnersforplanning.ca/ (there is a cost for planning services)

Online Groups for Siblings

SibNet for adult siblings https://www.facebook.com/groups/SibNet

Sib20 for sibs in their 20s https://www.facebook.com/groups/118970768514797

SibTeen for adolescent siblings https://www.facebook.com/groups/SibTeen

Hermanes Capaces for Spanish-speaking sibs around the world https://www.facebook.com/groups/hermanescapaces

Siblings Of Schizophrenia And Other Serious Mental illness for siblings of individuals with mental health concerns https://www.facebook.com/groups/174361526486445

Organizations

Sibling Support Project http://sibsupport.wwwaz1-tr100.supercp.com/

National Sibling Leadership Network (links to affiliated state chapters) https://siblingleadership.org/

Siblings with a Mission http://www.siblingswithamission.org/

Sibling Transformation Project https://www.siblingtransformation.org/

Special Needs Siblings https://specialneedssiblings.com/

SibStrong https://www.sibstrong.org/

National Black Disability Coalition https://www.facebook.com/black.disability

WisconSibs https://wisconsibs.org/

Sandy Feet Initiative (CA) https://www.sandyfeetoc.org/

Siblings Canada https://canadiancaregiving.org/siblingscanada/

Sibs (UK) https://www.sibs.org.uk/

Siblings Australia http://siblingsaustralia.org.au/

Actualizados (Argentina) https://actualizados.com.ar/

Siblings of Special Needs Nigeria https://www.instagram.com/sosneedsng/

SibTane (Japan) https://sibtane.com/

Alex’s Lemonade Stand Foundation (ALSF) SuperSibs, supporting siblings of children with cancer https://www.alexslemonade.org/childhood-cancer/for-families/supersibs

Parent to Parent USA, offering peer support for parents of children with support needs that strengthens the entire family https://www.p2pusa.org/.

Mesothelioma Hope, https://www.mesotheliomahope.com/resources/children/

Podcasts

“Constant Chaos” pod focuses on siblings: http://sibsupport.wwwaz1-tr100.supercp.com/constant-chaos-podcast-explores-supporting-siblings/

Sibling Support on the Better Behavior Show with Dr. Nicole Beurkens: http://sibsupport.wwwaz1-tr100.supercp.com/sibling-support-featured-on-the-better-behavior-show-with-dr-nicole-beurkens/.

“Once Upon a Gene” siblings edition: https://apple.co/2TxHDWC

“Live from Sibshops!” podcast from “A Piece of Hope” series produced by Appleseeds Behavioral Center in Georgia http://bit.ly/2oDvW3q

“Kid Logic” from This American Life https://www.thisamericanlife.org/605/kid-logic

Racial Equity Resources

Sibling Support Project Message on Tolerance

Anti-Racist resources for Sibshop Facilitators

BIPOC Sibling Roundtable Series: BIPOC Siblings Share their Stories

Reimagined (formerly Anti-Racism Daily)

https://equityinthecenter.org/aww/

Working Inside Out: Tools for Change by Margo Adair

The Future of Healing: Shifting From Trauma Informed Care to Healing Centered Engagement by Shawn Ginwright, Ph.D.

https://www.racialequitytools.org/glossary

Research

The Sibling Leadership Network has compiled a database of major sibling studies since 1962. A tremendous resource!

Sibling Relationships Around the World: Experiences of Siblings of Special Olympics Athletes – Findings from a study on siblings in Africa, Asia and Latin America 1-page Summary: https://bit.ly/3fcyGZR

Sibling engagement resources from Special Olympics: https://resources.specialolympics.org/community-building/families/sibling-engagement

Epilepsy & Behavior journal article on the impact that DEE’s have on siblings, titled “Psychosocial impact on siblings of patients with developmental and epileptic encephalopathies.” https://bit.ly/3sKUXI4

Resources for Grieving Siblings

Safe Crossings Foundation (to help children – see “get help” for activities to use with kids): http://safecrossingsfoundation.org/

The Dougy Center – Supporting Grieving Siblings: https://www.dougy.org/grief-resources/tip-sheets/supporting_grieving_siblings/1631

Armfuls of Time: The Psychological Experience of the Child With a Life-Threatening Illness by Barbara M. Sourkes (For parents/professionals)

Annie’s Hope Center for Grieving Kids http://annieshope.org/

The Hospice Foundation – grief resources https://hospicefoundation.org/Grief-(1)

What’s Your Grief? Website resources https://whatsyourgrief.com/

Loss of a Special Needs Sibling Facebook Group + online meetings (for adult sibs): https://www.facebook.com/groups/554229302095590

Compassionate Friends https://www.compassionatefriends.org/ FB group: https://www.facebook.com/TCFUSA

Crisis Text Line serves anyone, in any type of crisis, providing access to free, 24/7. https://www.crisistextline.org/text-us/ Text HOME to 741741 to reach a Crisis Counselor

Sibling Leadership Network grief info: https://siblingleadership.org/2020/07/16/new-grief-loss-resources/ and Sib Grief Webinar by Shruti Tekwani from September 2019

Trauma-Informed Practices

Books

Gabor Maté:

Peter Levine:

Bruce D. Perry:

Bessel van der Kolk: The Body Keeps the Score

Stephen Porges: The Polyvagal Theory (for professionals)

Mark Wolynn: It Didn’t Start With You

Thomas Hübl: Healing Collective Trauma

Julie Brown Yau: The Body Awareness Workbook for Trauma

John Sarno: The Mindbody Prescription: Healing The Body, Healing the Pain

Jeffrey Rediger: Cured: Strengthen Your Immune System and Heal Your Life

Anita Morjani: Dying to Be Me

Mark Epstein: The Trauma of Everyday Life

Daniel Siegel: The Developing Mind

Diane Poole Heller: The Power of Attachment

Laurence Heller and Aline Lapierre: Healing Developmental Trauma

Nadine Burke Harris: The Deepest Well: Healing the Long-Term Effects of Childhood Adversity

Resmaa Menakem: My Grandmother’s Hands: Racialized Trauma and the Pathway to Mending Our Hearts and Bodies

Videos

childhood trauma | PBS NewsHour

https://youtu.be/95ovIJ3dsNk

https://youtu.be/uH5JQDAqA8E

Other

SAMHSA’s Approach to Trauma-Informed Practices https://ncsacw.samhsa.gov/userfiles/files/SAMHSA_Trauma.pdf

https://www.aap.org/en/patient-care/foster-care/supporting-children-who-have-experienced-trauma/#traumatoolbox

https://downloads.aap.org/AAP/PDF/ttb_aces_consequences.pdf

Videos

Meet the Sibling Support Project https://youtu.be/_mYxPORJkN4

Meet Anya: https://youtu.be/qyz5Ds1m0q4

Yale New Haven Hospital In-Person Sibshop and Sibshops featured on ABC-TV’s 20/20: https://www.youtube.com/watch?v=gLi5AWpYASQ

Alicia Meneses Maples TedX San Antonio talk: Recognizing Glass Children https://www.youtube.com/watch?v=MSwqo-g2Tbk

Other Resources

The Sibling Support Bracelet. A symbol of sibling strength, designed by a sib to unite our community and donate 50% of proceeds to The Sibling Support Project.

Conversation Starter Cards (free, available in English and Spanish): https://health.mo.gov/living/families/connectwithme/cards.php

Sibling Resources for families and providers (variety, created by the NY State DD Council, the Sibling Leadership Network, and sibsNY): https://siblingresources.org/

Alateen for adolescents who have been affected by someone else’s drinking: https://al-anon.org/newcomers/teen-corner-alateen/

ABA Resources:

ABA Debate Series from the Arc of King County, Seattle WA https://arcofkingcounty.org/resource-guide/webinar-videos/unpacking-the-aba-debate-series.html

The On Time Autism Intervention Podcast, University of Washington: